Overview
This project will work closely with patients to design and test a new program that supports brain health in children and youth with childhood-onset lupus (cSLE). The investigators will see how practical and helpful the program is for patients.
Description
The proposed project will use a patient-informed participatory action approach to develop and assess preliminary feasibility and acceptability of an intervention tailored to address the specific brain health needs of cSLE patients.
Eligibility
Inclusion Criteria:
- Receive subject-informed consent;
- Have a current diagnosis of cSLE that meets the 1997 American College of Rheumatology (ACR) or System Lupus International Collaborating Clinics (SLICC) classification criteria
- Aged 13-18 years old
Exclusion Criteria:
- Conditions that significantly affect cognition (e.g., intellectual disability diagnosis, active psychosis), hearing loss or vision problems precluding participation in group
- Non-English speaking
- Lack of access to technology that would allow them to participate in the virtual intervention (e.g., phone, tablet, computer, etc.)
