Overview
To find good information about medullary thyroid cancer that is easy to understand and reliable, so researchers aim to design some new educational materials to help.
Description
Primary Objectives
- To co-develop a culturally-adapted educational tool for the Latino/Latina MTC population using the previously developed MTCEducate.org as a framework. (Phase 1)
- To test, refine, and produce a culturally adapted educational prototype and is intended to assess participants' understanding after reviewing the decision aid as part of the iterative testing and refinement process (Phase 2)
Secondary Objectives
- To assess the tool's acceptability post-production among a broader population of Latino(a) MTC participants and caregivers using the Ottawa Acceptability Scale (Phase 3)
- To disseminate the educational tool to a broader population of Latino(a)s
- To summarize the clinico-demographics of educational tool users
Eligibility
Inclusion criteria:
- Provision of signed and dated informed consent form
- Males and females; Age: ≥18 years old
- Identified ethnicity as "Hispanic" or "Latino/Latina"
- Ability to read, write, and speak Spanish
- Those who are pregnant are eligible to participate
- Have or will face this decision, including: a. Participant/survivor - who has medullary thyroid carcinoma, as determined by a clinician or documented in Multi-Institutional Medullary Thyroid Cancer Collaborative Registry; b. Caregiver/family member - of Participant/survivor who has medullary thyroid carcinoma, as nominated by the Participant/survivor
Exclusion Criteria:
- Those \< age 18
- Ethnic identity as non-Hispanic or non-Latino/a individual
- Individuals with cognitive or psychological impairment (e.g., depression, anxiety, severe mental illness as documented in the registry
