Overview
To learn about the effects of a participant support community on illness perception, emotional well-being, and feelings of isolation among participants with NECC.
Description
Primary Objective
1\. To assess the impact of a participant support community on illness perception, emotional wellbeing and feelings of isolation among participants diagnosed with NECC.
Secondary Objectives
- To understand how peer support affects communication with healthcare providers.
- To explore how the support group affects coping strategies.
- To evaluate the perceived value and acceptability of the support group structure and delivery.
- To identify unmet needs and challenges experienced by participants with NECC.
Eligibility
Eligibility Criteria
- Histologically confirmed NECC.
- Aged 18 years or older.
- English proficient.
- Provision of signed and dated informed consent form.
- Stated willingness to comply with all study procedures and availability for the duration of the study.
- Access to necessary resources for participating in a technology-based intervention (i.e., computer, smartphone, internet access).
Exclusion Criteria None
