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Adult Pulmonary Langerhans Cell Histiocytosis: a National Registry-based Prospective Cohort Study

Recruiting
18 years of age
Both
Phase N/A

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Overview

The long-term outcomes of adult patients with pulmonary Langerhans cell histiocytosis (PLCH), particularly survival, is largely unknown. This is the first prospective study in the field evaluating the long-term outcomes of PLCH patients. This french countrywide registry-based study included a large cohort of PLCH patients followed for a sufficiently long period to address risk factors of long-term outcomes of PLCH patients.

Eligibility

Inclusion Criteria:

  • Age >= 18 years
  • Diagnosis of PLCH was either histologically confirmed on a biopsy of an involved tissue, or based on the combination of the following criteria: 1) an appropriate clinical picture; 2) a typical nodulo-cystic pattern on lung high-resolution computed tomography (HRCT) and 3) exclusion of alternative diagnoses

Exclusion Criteria:

-

Study details

Histiocytosis, Histiocytosis, Langerhans-Cell, Histiocytosis Pulmonary

NCT04665674

Assistance Publique - Hôpitaux de Paris

25 January 2024

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