Image

The MS-LINK™ Outcomes Study

The MS-LINK™ Outcomes Study

Non Recruiting
18 years and older
All
Phase N/A

Powered by AI

Overview

The Multiple Sclerosis (MS) Leadership and Innovation Network (MS-LINK™) is comprised of networks working cooperatively to advance Multiple Sclerosis (MS) science and improve MS participant outcomes. In this study participants will be followed from the time of consent through the lifetime of the study (currently 3 years), unless the participant chooses to withdraw from the study. Collection of participant's medical history, including MS and treatment history, will be automated through extraction from the participant's electronic medical record (EMR) and other health information systems (for example, radiology). Participants will complete patient-reported outcomes (PROs) and other health-related information digitally. Participating participants will have access to their own data in an ongoing manner via a web-based Participant Portal.

Eligibility

Inclusion Criteria:

  • Participants willing and able to provide written informed consent
  • Participants willing to be contacted while participating in the study for recruitment into sub-studies that may be relevant to them
  • Participants willing and able to complete PROs on a monthly basis and document events of interest as they occur
  • Participants willing to participate in additional follow up at the site for at least three years

Exclusion Criteria:

  • Unable to complete questionnaires in English
  • Unable to consistently access the Internet
  • Participants participating in interventional clinical drug trials at baseline

Study details
    Multiple Sclerosis

NCT04735406

EMD Serono Research & Development Institute, Inc.

20 August 2025

FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
Add a private note
  • abc Select a piece of text.
  • Add notes visible only to you.
  • Send it to people through a passcode protected link.