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Found 64,778 clinical trials
S Suzanne Hansen, RD

Registry for Patients Receiving Intravenous Nutrition at Home

The purpose of study is to build a Canadian HTPN Registry to collect pertinent demographic and clinical data on the HTPN population in Canada and to determine the factors affecting survival, complications and TPN-dependency. These results will help establish standards of practice and develop future multi-center studies. This will greatly …

18 years of age All Phase N/A

Austrian Myeloid Registry

The Austrian Myeloid Registry (aMYELOIDr) is a non-interventional study. It collects data from patients with the myeloid diseases, primarily myelodysplastic syndromes (MDS), chronic myelomonocytic leukemia (CMML) and acute myeloid leukemia (AML).The aMYELOIDr is multi-center database collecting data at various sites in Austria and potentially also at other centers in other …

18 years of age All Phase N/A
M Melissa Hines, MD

Long-term Follow-up After Adoptive Transfer of Genetically Modified Cell Products

Human gene therapy products are designed to achieve therapeutic effect through genetic modifications of human cells using retroviral or lentiviral vectors, resulting in permanent or long-acting changes in the human body. With this genetic modification comes risk of undesirable adverse events. Due to this risk, the Food and Drug Administration …

years of age All Phase N/A
N Neal S Mantick, BS, MS

The Fibrodysplasia Ossificans Progressiva (FOP) Connection Registry

The Fibrodysplasia Ossificans Progressiva (FOP) Connection Registry is a global, non-interventional, voluntary database that captures demographic and disease data directly from FOP patients and their caregivers via a secure, web-based patient portal. A physician portal (in development) will allow physicians to enter clinical data about their patients. The objectives are …

years of age All Phase N/A
J Jill A Harsch, BS

Glowing and Expecting Follow Up

This study will help us learn more about how a mother's health during pregnancy may influence her child's growth and development later in life.

5 - 14 years of age All Phase N/A
G Gregor Fharni, Dr. med.

CARDSUP - SWISS Circulatory Support Registry

The project's main goal is to collect baseline clinical and procedural data as well as to assess clinical outcomes for all patients undergoing ECMO or Impella implantation at all included sites. All patients undergoing ECMO and/or IMPELLA implantation will be prospectively registered. Device use is according to the decision of …

18 years of age All Phase N/A
E Elisa Serantes

Coronary Microvascular Disease (CMD) Registry

The purpose of this project is to provide appropriate administrative and technical supports for the warehousing and use of a database of patients with coronary microvascular disease (CMD). This protocol will outline the process for identification and capture of data, storage, as well as data use and sharing internally and …

18 years of age All Phase N/A
J Juliana Laze

Risk Factors for Sudden Unexplained Death in Epilepsy

The main purpose of this study is to develop a North American registry for SUDEP cases; requesting family members of epilepsy patients who died suddenly of unclear causes (SUDEP) to contact the study team. The family members who decide to participate in the study will be asked to complete a …

years of age All Phase N/A
A Alice R Kongsted, PhD

GLA:D® Back: Patient Education and Exercises for Self-management of Back Pain

The GLA:D Back project evaluates the implementation of standardised patient education and exercise therapy for people with persistent or recurrent low back pain (LBP) in a hybrid implementation-effectiveness design. This involves evaluating the process of implementation as well as clinician level outcomes and patient level outcomes. GLA:D (Good Life with …

18 years of age All Phase N/A
D David G Lewallen, MD

American Joint Replacement Registry

The American Joint Replacement Registry is a not-for-profit 501(c)(3) organization for data collection and quality improvement initiatives for total hip and knee replacements. The AJRR is a collaborative effort supported by the American Academy of Orthopaedic Surgeons (AAOS), the American Association of Hip and Knee Surgeons (AAHKS), The Hip Society, …

years of age All Phase N/A

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