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unverricht-lundborg-syndrome Clinical Trials

A listing of unverricht-lundborg-syndrome medical research trials actively recruiting patient volunteers. Search for closest city to find more detailed information on a research study in your area.

Found 4 clinical trials
S Silvia Prades, PhD

CureDRPLA Global Patient Registry

The objective of the CureDRPLA Global Patient Registry is to establish a longitudinal database of patient-reported data on individuals affected with Dentatorubral-pallidoluysian atrophy (DRPLA) from anywhere in the world. The CureDRPLA Global Patient Registry will address patient needs by: Expanding patient engagement by documenting quality of life outcomes. Providing anonymized …

- 100 years of age Both Phase N/A
C CoRDS Team

Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures …

- 100 years of age Both Phase N/A

Tissue Repository Providing Annotated Biospecimens for Approved Investigator-directed Biomedical Research Initiatives

To collect, preserve, and/or distribute annotated biospecimens and associated medical data to institutionally approved, investigator-directed biomedical research to discover and develop new treatments, diagnostics, and preventative methods for specific and complex conditions.

18 - 85 years of age Both Phase N/A
P Paola Giunti

Dentatorubral-pallidoluysian Atrophy Natural History and Biomarkers Study

DRPLA Natural History and Biomarkers Study (DRPLA NHBS) is a prospective observational study that will lay the foundation for clinical trials in DRPLA. The aims of this project are: To characterize the natural history of DRPLA in both juvenile- and adult-onset patients and study different modalities of biomarkers in this …

- 100 years of age Both Phase N/A

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