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neuronal-ceroid-lipofuscinoses-ncl Clinical Trials

A listing of neuronal-ceroid-lipofuscinoses-ncl medical research trials actively recruiting patient volunteers. Search for closest city to find more detailed information on a research study in your area.

Found 1 clinical trials
A Angela Schulz, MD, PhD

Natural History and Longitudinal Clinical Assessments in NCL / Batten Disease, the International DEM-CHILD Database

This is an observational study that aims at assessing the natural history of NCL diseases as part of the international DEM-CHILD Database. Patient data are collected from medical records, patient questionnaires and routine follow up clinical examinations with focus on assessing progression in key areas of disease such as motor, …

- 100 years of age Both Phase N/A

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