neuronal-ceroid-lipofuscinoses-ncl Clinical Trials
A listing of neuronal-ceroid-lipofuscinoses-ncl medical research trials actively recruiting patient volunteers. Search for closest city to find more detailed information on a research study in your area.
Found 1 clinical trials
A
Angela Schulz, MD, PhD
Natural History and Longitudinal Clinical Assessments in NCL / Batten Disease, the International DEM-CHILD Database
This is an observational study that aims at assessing the natural history of NCL diseases as part of the international DEM-CHILD Database. Patient data are collected from medical records, patient questionnaires and routine follow up clinical examinations with focus on assessing progression in key areas of disease such as motor, …