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Evaluate the Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

Evaluate the Diagnostic Journey, Patient Experience, and Disparities in the Treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System

Recruiting
18 years and older
All
Phase N/A
  • Technical (Original)
  • Simplified (AI rewritten)

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Overview

Evaluate the diagnostic journey, patient experience, and disparities in the treatment of Spinal Muscular Atrophy (SMA) in the MedStar Health System.

Eligibility

Inclusion Criteria:

  • SMA diagnosis, age greater than or equal to 18 years

Exclusion Criteria:

  • Deceased

Study details
    Spinal Muscular Atrophy (SMA)

NCT07223489

Medstar Health Research Institute

31 October 2025

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