Overview
The goal of the GC-PRO study is to try to make genetic counseling better for people of all backgrounds. We are asking participants to complete two surveys and to allow audio recording of their genetic counseling visit. The purpose of the study is to understand whether trying different ways of doing genetic counseling will lead to better experiences for patients. The research team is also working with partners from the Somali, Latino/Hispanic, Black/African American, and Hmong communities to make sure the research is being done in a way that will benefit underserved communities.
Eligibility
Inclusion Criteria:
- Aged 18 years or older
- individual OR their child has been referred to genetic counseling for family and/or personal history of hereditary cancer, cardiology condition, general genetics indication, or reproductive/prenatal indication at a participating study site
- understand and be able to provide information for study forms and surveys in English.
Exclusion Criteria:
- Unable to provide informed consent
- For pediatric genetic counseling referrals, individuals who are not the parent or legal guardian of the child will be excluded from participating.