Overview
The purpose of this project is to pilot test an electronically delivered symptom assessment tool Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (Ped-PRO-CTCAE), completed by children/adolescents and young adults (AYAs) and caregivers and shared with their clinicians during an outpatient clinic visit, in preparation for a future test of intervention efficacy.
Eligibility
Inclusion Criteria:
- First diagnosis of cancer
- Receiving cancer therapy: surgery, myelosuppressive chemotherapy and/or radiation
- 7-21 years of age
- Completed at least 1 month of cancer chemotherapy treatment and are within 7-28 days of starting a treatment cycle or during ongoing therapy, followed at least every month in clinic
- If surgery was part of treatment, the patient must be 3-6 weeks post surgery before participating in study
- Caregiver must be present and 18 years and older.
- Ability to understand and the willingness to personally sign the written IRB approved informed consent or assent document as appropriate.
Exclusion Criteria:
- Child must be able to read or listen to and understand English and not have cognitive/memory impairments determined by the child's clinician
- Caregiver must be able to read and understand English.