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A Randomised Controlled Trial, Of N-Acetyl Cysteine (NAC), for Premanifest Huntingtin Gene Expansion Carriers

A Randomised Controlled Trial, Of N-Acetyl Cysteine (NAC), for Premanifest Huntingtin Gene Expansion Carriers

Recruiting
18 years and older
All
Phase 2

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Overview

NAC-preHD is a phase II randomized placebo controlled study of oral NAC among premanifest HD gene expansion carriers, with clinical and radiological outcome at three years.

Eligibility

Inclusion Criteria:

  • Able to provide informed consent
  • Huntingtin gene expansion carrier with >= 39 CAG repeats
  • Absence of unequivocal motor signs of HD - that is, UHDRS
  • Diagnostic Confidence Level needs to be <4 upon enrolment
  • Expected to develop clinical HD within 10 years of trial enrolment using the Langbehn formula
  • Availability of an informant for corroborative history
  • Negative serum pregnancy test for women of childbearing potential
  • If of childbearing potential, is able and agrees to remain abstinent or use adequate contraceptive methods
  • Ability to tolerate MRI scans
  • Ability to tolerate blood draws
  • Able to comply with all study protocol requirements, according to the investigators judgement
  • In the opinion of the investigator, medically, psychiatrically and neurologically stable at the time of enrolment

Exclusion Criteria:

  • Diagnosis of clinical HD
  • Known hypersensitivity to NAC
  • Pregnancy, breastfeeding or intention to do so prior to the end of the study
  • Exposure to any investigational drugs within 30 days of Baseline Visit
  • Use of supplemental NAC
  • Abnormalities in laboratory measurements, ECG or vital signs at screening, which precludes safe participation in the study
  • Current or history of substance abuse within one year of Baseline visit
  • Unstable psychiatric or acute medical illness including cancer, as determined by investigator
  • Current use of antipsychotic medications or Tetrabenazine
  • History of gene therapy, cell transplantation, or any experimental brain surgery
  • History of attempted suicide or suicidal ideation within 12 months prior to screening
  • Pre-existing structural brain lesion as assessed by a centrally read MRI scan during the screening period

Study details
    Huntington Disease

NCT05509153

Western Sydney Local Health District

25 August 2025

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