Overview
This trial tests how well the advanced care planning around mobility needs checklist tool works to assess future mobility needs in patients with sarcoma. Gathering information about sarcoma patients that have had surgery to either save or remove a limb may help doctors learn more about a patient's mobility needs. Using an advance care planning mobility needs assessment may help improve the quality of life in patients with sarcoma by helping them plan for their future mobility needs.
Description
- OUTLINE
FIELD TEST: Participants complete the advance care planning (ACP) Mobility Checklist on study. Participants complete questionnaires at baseline and after completing the checklist intervention and undergo interview on study. Participants' medical records are also reviewed.
Eligibility
Inclusion Criteria:
- PATIENTS: Age 18 years of age or older.
- PATIENTS: English speaking
- PATIENTS: Able to provide informed consent
- PATIENTS: Have access to a computer or other device to fill out the online checklist
- PATIENTS: Have had either limb salvage or amputation surgery for sarcoma within the last 6 months OR have metastatic (stage IV) sarcoma and are in active treatment.
- CAREGIVERS: Age 18 years of age or older
- CAREGIVERS: English speaking
- CAREGIVERS: Able to provide informed consent
- CAREGIVERS: Have access to a computer or other device to fill out the online checklist
- CAREGIVERS: The person (family member or friend) whom the patient indicates being an informal caregiver