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Evaluation of Hereditary Cancer Educational Videos

Recruiting
18 years of age
Both
Phase N/A

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Overview

To learn if educational videos can help participants be more informed about hereditary cancers (ones that run in the family).

Description

Primary Objective

Determine the impact of educational videos on:

  • Participant's hereditary cancer knowledge.
  • Participant's confidence to share hereditary cancer information with family members.

Secondary Objective

  • Determine impact of educational videos on participant's confidence to undergo hereditary cancer screening.
  • Identify opportunities to tailor and improve the educational video's content, style, and understandability per participant preferences and feedback.

Eligibility

Inclusion Criteria:

  1. Participants of The Harris Health System Lyndon B. Johnson (LBJ) Hospital outpatient oncology clinics (i.e., Gynecologic Oncology, Medical Oncology).
  2. 18 years of age or older.
  3. Speaks and/or reads English or Spanish.
  4. Has a pathogenic or likely pathogenic variant (mutation) in BRCA1, BRCA2, MLH1, MSH2, MSH6, PMS2, and/or EPCAM on germline genetic testing.
  5. Has a documented genetic testing results disclosure encounter (i.e. telephone call, follow-up appointment).

Exclusion Criteria:

  1. No longer receives outpatient care at LBJ Hospital at time of recruitment.
  2. Has only a variant of uncertain significance in BRCA1, BRCA2, MLH1, MSH2, MSH6, PMS2, and/or EPCAM.
  3. Has only a pathogenic or likely pathogenic variant in gene other than BRCA1, BRCA2, MLH1, MSH2, MSH6, PMS2, or EPCAM.
  4. Is unwilling, unable, or requires a legally authorized representative to provide informed consent.

Study details

Hereditary Cancer

NCT06157801

M.D. Anderson Cancer Center

30 April 2024

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