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Generating Advancements Through Longitudinal Analysis in X and Y Variations (GALAXY)

Generating Advancements Through Longitudinal Analysis in X and Y Variations (GALAXY)

Recruiting
100 years and younger
All
Phase N/A
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  • Simplified (AI rewritten)

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Overview

GALAXY is a registry research study that plans to learn more about individuals with X&Y variations (also called sex chromosome aneuploidies) through collecting information from medical records.This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. The purpose of the GALAXY Registry is to collect and store this information with the overall goal to improve health outcomes in individuals with X&Y variations and the care they receive.

Eligibility

Inclusion Criteria:

  1. Genetically-confirmed diagnosis of a sex chromosome aneuploidy condition
  2. Any age
  3. Any gender
  4. Informed consent for individuals >18 years of age, parent/guardian permission for individuals <18 or proxy-consent from legally authorized representative if impaired decision making

Exclusion Criteria:

  1. Lack of documentation of genetic testing confirming SCA diagnosis

Study details
    Sex Chromosome Aneuploidy

NCT06373861

University of Colorado, Denver

30 April 2024

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