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CHARGE Study: CHoice ARchitecture Genetic tEsting

Recruiting
18 years of age
Both
Phase N/A

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Overview

CHARGE is a hybrid type I feasibility study to compare a choice architecture intervention for cascade genetic testing to usual care.

Description

CHARGE study contains two arms: Arm 1) Usual care, comprising of standard genetic counseling and education to probands regarding cascade testing; and Arm 2) Direct mailing of a home genetic testing kit to probands' at-risk relatives that can be returned directly to a commercial genetic testing laboratory, including educational information on the importance and cost of cascade testing

Eligibility

Proband Inclusion Criteria:

  • Have a newly reported pathogenic or likely pathogenic variant in one or more of the following genes: APC, ATM, BRCA1, BRCA2, CDH1, CHEK2, PALB2, MLH1, MSH2, MSH6, PMS2, PTEN, TP53
  • 18 years of age or older
  • English fluency
  • Have at least 1 adult living genetically related relative who resides in Texas

Proband Exclusion Criteria:

  • Referred for genetic testing by a relative with a pathogenic variant
  • Unwilling to be randomized to a study arm

Relative Inclusion Criteria:

  • 18 years of age or older
  • English fluency
  • Residing in Texas

Study details

Hereditary Cancer

NCT06284330

University of Texas Southwestern Medical Center

15 April 2024

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