Overview
The goal of this pilot study is to assess the feasibility of adapting and delivering the existing home-based epilepsy self-management intervention, HOBSCOTCH, for people with Parkinson's Disease (PD)
The main questions it aims to answer are:
- Can the current HOBSCOTCH program be adapted for people with PD?
- Will people with PD experience improved quality of life similar to that found in people with epilepsy after participating in the HOBSCOTCH program?
Participants will be asked to:
- attend nine, one-hour virtual (online and/or by telephone) HOBSCOTCH-PD sessions with a one-on-one certified HOBSCOTCH-PD coach
- complete a brief clinical questionnaire about their diagnosis of PD
- complete two questionnaires before and after the HOBSCOTCH-PD sessions about their quality of life and about memory and thinking processes
- keep a short daily diary about their PD symptoms and use of the self-management strategies taught in the HOBSCOTCH-PD program
- complete a brief Satisfaction Survey after the entire HOBSCOTCH-PD program
Eligibility
Inclusion Criteria:
- Age 30 - 75 years
- Diagnosis of Parkinson's Disease per participant's provider
- Literate, English-speaking with grade 12 or equivalent in education
- Self-reported cognitive/memory difficulties
- Telephone and internet access
Exclusion Criteria:
- Cognitive dysfunction that precludes participation in giving informed consent
- Significant visual impairment precluding reading or writing
- No reliable telephone or internet access