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A National Registry on Chinese Patients With Cystic Fibrosis

A National Registry on Chinese Patients With Cystic Fibrosis

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Phase N/A

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Overview

Cystic fibrosis (CF) is a rare autosomal recessive disease involving multiple organs, especially the lungs and digestive organs. It is most commonly seen in Caucasians. Only a few Chinese CF patients have been described in literature, taking into account the large population of China. The main objectives of this study are to accurately evaluate the prevalence of CF, the status of disease, the diagnosis and treatment, the quality of care, and the health related outcomes in China.

Eligibility

Inclusion Criteria:

        Fulfilled WHO clinical diagnostic criteria for CF; Was in a stable phase with no
        respiratory infections for nearly 4 weeks; Subjects (or their guardians) signed informed
        consent.
        Exclusion Criteria:
        Patients with other bronchiectasis who did not meet the inclusion criteria; Those with
        severe cardiac or renal disease

Study details
    Pulmonary Function

NCT05289245

Peking Union Medical College Hospital

28 January 2024

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A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

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