Overview
To validate the 2 questionnaires ZARIT-12 and CBI it is important to go through several
- stages
-
- translation stage : during this stage there will be a meeting of experts to Validate the test version in French by 4 Bilingual translators of the French and English mother tongue.
- pilot stage : recruit a number of 30 neurological patients' caregivers, in order to validate the comprehension, thus obtaining the final version of the questionnaire.
- Validation stage : the two questionnaires have been validated, in this stage there
should be a recruitment of 264 participants for the CBI questionnaire and 120
participants for the ZARIT-12 questionnaire, and these 2 questionnaires will be deliver
to the participant on the same day.
- The first questionnary will have to be filled the day they get the questionnary (day 1).
- The second one must be completed and sent fourteen days later (day 14).
Description
To validate the 2 questionnaires ZARIT-12 and CBI it is important to go through several
- stages
-
- translation stage : during this stage there will be a meeting of experts to Validate the test version in French by 4 Bilingual translators of the French and English mother tongue.
- pilot stage : recruit a number of 30 neurological patients' caregivers, in order to validate the comprehension, thus obtaining the final version of the questionnaire.
- Validation stage : the two questionnaires have been validated, in this stage there should be a recruitment of 264 participants for the CBI questionnaire and 120 participants for the ZARIT-12 questionnaire, and these 2 questionnaires will be deliver to the participant on day 1. The first questionnary will have to be filled on day 1 and the second one must be completed and sent fourteen days later (so on day 14)
Eligibility
Inclusion Criteria:
- Caregivers (family or friend) of patients followed for a central neurological pathology (MS, BM, Parkinson's, stroke, congenital (Spina...)) or peripheral (ponytail, peripheral neuropathies)
- Adult caregivers (age ≥ 18 years), regardless of the patient's age
- Francophone caregivers (ability to read, write and understand French)
- Caregivers who did not object to the use of their data or the patient's data for research
Exclusion Criteria:
- - Professional caregivers
- caregivers of patients being cared for with a pathology other than neurological
- Minor caregivers (age ≤ 17 years)
- Caregivers with no or poor French language skills
- Caregivers who refused to participate in the research