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Characterization of 3q29 Deletion Syndrome and 3q29 Duplication Syndrome

Characterization of 3q29 Deletion Syndrome and 3q29 Duplication Syndrome

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Overview

The 3q29 deletion syndrome is caused by a deletion of a small part of human chromosome 3, and the duplication syndrome is caused by a duplication of this same small region. The purpose of this study is to understand the medical and behavioral consequences of these syndromes.

Description

People with 3q29 deletion syndrome are missing a small part of a region on human chromosome 3, and people with 3q29 duplication syndrome have an extra part of their chromosome 3. Sometimes babies are born with a deletion or duplication of part of human chromosome 3, even though their parents have an intact chromosome 3. This is called de novo (or new) abnormalities.

Eligibility

Inclusion Criteria:

  • Diagnosis of 3q29 deletion or 3q29 duplication
  • Consent from parents or guardians or an adult with 3q29 deletion or 3q29 duplication that does not require a legal guardian or an adult who is the healthy sibling of an individual with 3q29 deletion or 3q29 duplication or a healthy age-matched control

Exclusion Criteria:

  • Clinically significant medical disease that would prohibit participation in the study procedures

Study details
    Microdeletion 3q29 Syndrome
    Microduplication 3q29 Syndrome

NCT02447861

Emory University

28 January 2024

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