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Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry

Inspiring New Science In Guiding Healthcare in Turner Syndrome Registry

Recruiting
Female
Phase N/A
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  • Simplified (AI rewritten)

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Overview

INSIGHTS is a registry research study that collects key information on medical history for girls and women with Turner syndrome and the clinical care they receive. This includes genetic tests, imaging, medications, and more for hundreds of patients seen at a number of clinics across the US. In addition to learning a lot about the current state of health for individuals with TS, INSIGHTS serves as an infrastructure to conduct future studies are meaningful to patients and their families.

Eligibility

Inclusion Criteria:

  1. Individuals with TS and TS variants as defined by the TS Clinical Practice Guideline definition (karyotype consistent with TS, phenotypic female, clinical feature(s) of TS)
  2. Informed consent/assent as appropriate

Exclusion Criteria:

  1. Lack of a TS diagnosis on file

Study details
    Turner Syndrome

NCT05052606

University of Colorado, Denver

17 April 2024

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FAQs

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A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

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