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China Amyotrophic Lateral Sclerosis Registry of Patients With Traditional Chinese Medicine

China Amyotrophic Lateral Sclerosis Registry of Patients With Traditional Chinese Medicine

Recruiting
18 years and older
All
Phase N/A
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  • Simplified (AI rewritten)

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Overview

A multi-center registration study of clinical characteristics of amyotrophic lateral sclerosis (ALS) patients with traditional Chinese medicine (TCM).

Description

The CARE-TCM is a prospective, multi-center, patient registry study. Eligible ALS patients with TCM treatments will be enrolled in the registry. After enrollment, this research collects the individual characteristics of patients' status. Longitudinal follow-up data are collected from both patients (primary caregivers) and their treating neurologists every 3 months for 5 years. The aims of the CARE-TCM are to: 1) explore the general characteristics of ALS patients with TCM and; 2) assess the effectiveness and safety of various TCMs on ALS based on nationwide registry outcome collecting process.

Eligibility

Inclusion Criteria:

  • Patients aged 18 years and older.
  • Patients with possible, laboratory supported probable, probable, or definite ALS according to the revised El Escorial criteria.
  • ALS patients treated with traditional Chinese medicine.

Exclusion Criteria:

  • Patients who refuse informed consent.

Study details
    Amyotrophic Lateral Sclerosis

NCT04885374

Dongzhimen Hospital, Beijing

28 January 2024

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