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Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

Recruiting
18 years and older
All
Phase N/A
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Overview

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Eligibility

Inclusion Criteria:

  • Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).
  • Proficiency to complete study assessments in English, evaluated at the time of consent.
  • Age 18 or over.

Exclusion Criteria:

  • Participant unwilling to sign consent.
  • Participant unable to complete web-based assessments.

Study details
    Supportive Care Needs of Caregivers

NCT03990428

Memorial Sloan Kettering Cancer Center

27 January 2024

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