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MDTRP Neuromuscular Research Biobank

MDTRP Neuromuscular Research Biobank

Recruiting
75 years and younger
All
Phase N/A

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Overview

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Description

The study involves collection of medical information about research participants and their families. No identifying information about family members will be collected. Research participants will be asked for any general knowledge they have related to possible neurological disorders.

Research participants are also given the opportunity to provide blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA and/or RNA samples.

Before any study procedures take place, the informed consent form will be provided and reviewed with potential research participants in detail. Potential research participants will have an opportunity to ask additional questions before starting any study procedures.

Eligibility

Inclusion Criteria:

  • Willing and able to give informed consent
  • Positive diagnosis or suspected diagnosis of neuromuscular disease, or
  • Family history of neuromuscular disease, or
  • Healthy volunteer
  • Age Neonates-75

Exclusion Criteria:

  • Unwilling to sign consent

Study details
    Neuromuscular Diseases
    Neuromuscular Disorder
    Neuromuscular Diseases in Children

NCT05434572

Virginia Commonwealth University

28 May 2024

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FAQs

Learn more about clinical trials

What is a clinical trial?

A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

Why should I take part in a clinical trial?

Participating in a clinical trial provides early access to potentially effective treatments and directly contributes to the healthcare advancements that benefit us all.

How long does a clinical trial take place?

The duration of clinical trials varies. Some trials last weeks, some years, depending on the phase and intention of the trial.

Do I get compensated for taking part in clinical trials?

Compensation varies per trial. Some offer payment or reimbursement for time and travel, while others may not.

How safe are clinical trials?

Clinical trials follow strict ethical guidelines and protocols to safeguard participants' health. They are closely monitored and safety reviewed regularly.
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