Overview
The purpose of this study is to improve patient-centered care for acute kidney injury (AKI) in order to decrease the adverse health outcomes associated with this common condition.
Description
There is a need to provide better patient-centered care for acute kidney injury (AKI) in order to improve the adverse health outcomes associated with this common condition. This project involves thorough evaluation of patient and provider feedback on barriers and facilitators to pediatric AKI self-management in order to develop patient-centered pediatric AKI interventions. This will be done through interviews with families of patients diagnosed with AKI and providers who take care of these patients followed by integration of the results into modification of an existing educational tool previously used in adult patients. The study will take place in three parts with the first involving interviews, the second involving tool modification and usability testing, and the third involving pilot testing of the tool's impact.
Eligibility
Inclusion Criteria:
- age 1 to 18 years
- patients with diagnosis of AKI while hospitalized
Exclusion Criteria:
- legal blindness of deafness
- cognitive impairment that limits ability to consent
- non-English speaking
- patient age greater than age 18 years, 11 months