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National Register of Oesophageal Atresia

National Register of Oesophageal Atresia

Recruiting
1 years and younger
All
Phase N/A

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Overview

The esophageal atresia is a group of birth defects including a break in continuity of the esophagus with or without persistent communication with the trachea (tracheoesophageal fistula), sometimes associated (from 50%) of other malformations (heart, kidney, digestive ...).

The current prognosis for this ailment is good. However he persists a mortality (<10%) and significant morbidity, firstly related malformations (heart, kidney, for example), and secondly with particularly difficult anatomical forms (Forms long defect) .

The prevalence of this condition is estimated to be 1/2500 in 3000 live births, making an estimated ± 2,500 new cases over to 10 years in France.

The current project aims to set up a national registry (Metropolitan France and Dom Tom) to measure the prevalence of esophageal atresia among live births, phenotypic characteristics, the circumstances of their diagnosis, and their initial future at short-term during the first year of life, at which time occurs the vast majority of deaths and complications in this disease.

Eligibility

Inclusion Criteria:

  • To be born in France
  • To have a esophageal atresia

Exclusion Criteria:

  • To be born abroad

Study details
    Esophageal Atresia

NCT02883725

University Hospital, Lille

27 January 2024

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