Overview
This clinical trial studies the effectiveness of a newly developed survivorship mobile application (app) designed for survivors, or their caregivers, of childhood cancer to help them better navigate long-term follow-up care. The survivorship app provides survivors access to their treatment history and follow-up recommendations, improves knowledge of their diagnosis, treatment, risks, and recommended follow-up care by using a message notification. The ability to quickly connect and establish care planning may enhance adherence to recommended follow-up.
Description
PRIMARY OBJECTIVE:
I. To determine the difference in survivor/caregiver knowledge and understanding of diagnosis, treatment information, and follow-up needs using the survivorship app.
SECONDARY OBJECTIVE:
I. To validate the usability and effectiveness of the survivorship mobile application.
- OUTLINE
Participants are seen in the survivorship clinic and receive education about potential late effects and the survivorship application on study. Participants then use the survivorship app for 4 months on study.
Eligibility
Inclusion Criteria:
- Survivors of childhood cancer attending Survivorship Clinic at University of California, San Francisco (UCSF) OR caregivers of a childhood cancer survivor attending Survivorship Clinic at UCSF.
- Must have a mobile device (smartphone or smart-tablet) with service plan.
- Must have ability to read, write, and understand English language.
Exclusion Criteria:
- An individual who does not meet any of the criteria mentioned above will be excluded from participation in this study.