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Measure of Acceptance of chRonic Visible sKin conditionS

Measure of Acceptance of chRonic Visible sKin conditionS

Recruiting
6 years and older
All
Phase N/A

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Overview

The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness).

Description

The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness).

The investigator will screen the patients and give them a link to complete the questionnaire (according to the age), that includes a pre-scale of acceptation of 50-55 items.

Eligibility

Inclusion Criteria:

  1. Targeted pathologies:
    • Flat angioma
    • Primary hypopigmentation and early vitiligo
    • Primary hyperpigmentation
    • Refractory alopecia areata or congenital alopecia
  2. Persons concerned:
    • Children (≥ 6 years old) suffering from one of the aforementioned pathologies
    • Adults suffering from one of the above-mentioned pathologies
    • Parents of children suffering from one of the aforementioned pathologies
    • Parents of young adult patients if they live under the same roof
  3. Oral agreement for each person (major/minor) and, where applicable, one of the holders

    of parental authority (minor)

Exclusion Criteria:

  1. Secondary "marks" (post-inflammatory, post-medication, post-traumatic, etc.)
  2. Major psychiatric disorders

Study details
    Acceptance of Visible Chronic Dermatological Disease
    Disease Acceptance
    Psychological Well-Being
    Social Segregation

NCT06103903

University Hospital, Tours

26 January 2024

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