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Pulmonary Hypertension Biorepository and Registry

Pulmonary Hypertension Biorepository and Registry

Recruiting
18 years and older
All
Phase N/A

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Overview

Establish a pulmonary hypertension registry and biorepository to lead towards a further understanding of the disease.

Description

The aim of this project will be to establish a broad and wide-ranging registry and biorepository of blood samples from patients with pulmonary hypertension, including all WHO groups I-V to be used for future research in these areas. This will be both a retrospective and prospective project. The registry and biorepository will be utilized to study and grow our knowledge of the cellular mechanisms and mediators of the disease and, in turn, contribute to advancements in treatment.

Eligibility

Inclusion Criteria:

  1. The participant is a patient at TUKHS or has agreed to participate in a study approved by the KUMC Human Research Protection Program (HRPP)
  2. The participant has a diagnosis of pulmonary hypertension confirmed by right heart catheterization
  3. Patient is ≥ 18 years of age or older

Exclusion Criteria:

  1. Participant declines to participate (living patients only)
  2. Participant is unable to provide informed consent (living patients only)

Study details
    Pulmonary Hypertension
    Pulmonary Arterial Hypertension
    Pulmonary Hypertension Due to Left Heart Disease
    Pulmonary Hypertension
    Primary
    Pulmonary Hypertension Due to Lung Diseases and Hypoxia
    Pulmonary Hypertension
    Primary
    4
    Pulmonary Hypertension
    Primary
    2
    Pulmonary Hypertension
    Primary
    3
    Chronic Thromboembolic Pulmonary Hypertension

NCT04808596

University of Kansas Medical Center

26 January 2024

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