Overview
This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.
The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.
Eligibility
Inclusion Criteria:
- Participants must have a diagnosis of desmoplastic small round cell tumor
- Participants may be of any age as long as the appropriate consent and assent may be obtained
- Willing to provide historical and longitudinal clinical data
Exclusion Criteria:
- Participant unwilling to provide consent or share historical and longitudinal clinical data