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Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

Registry to Collect Health Information About Desmoplastic Small Round Cell Tumor

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Phase N/A

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Overview

This study is a patient registry of people with Desmoplastic Small Round Cell Tumor (DSRCT). A patient registry is a collection of health information about a group of people, and it is usually focused on a specific diagnosis or disease.

The purpose of this registry is to create a database- a collection of information-or better understanding DSRCT. Researchers will use the information from this database to learn more about DSRCT and for current and future research on DSRCT.

Eligibility

Inclusion Criteria:

  • Participants must have a diagnosis of desmoplastic small round cell tumor
  • Participants may be of any age as long as the appropriate consent and assent may be obtained
  • Willing to provide historical and longitudinal clinical data

Exclusion Criteria:

  • Participant unwilling to provide consent or share historical and longitudinal clinical data

Study details
    Desmoplastic Small Round Cell Tumor

NCT04690374

Memorial Sloan Kettering Cancer Center

26 January 2024

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A clinical trial is a study designed to test specific interventions or treatments' effectiveness and safety, paving the way for new, innovative healthcare solutions.

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