Overview
The goal of this observational study is to test the questionnaire CLEFT-Q in a population of patients with cleft lip and/or palate. The main questions it aims to answer are:
- Are CLEFT-Q scores reliable over time?
- Can CLEFT-Q detect change following surgical treatment intervention?
- What is the norm for CLEFT-Q within a control population who do not have cleft lip and/or palate?
- What is the Minimal Clinically Important Change of CLEFT-Q in different subpopulations of cleft lip and/or palate?
- Do changes in CLEFT-Q scores correlate with changes in objective outcomes following a surgical intervention?
- What are the main expectations that patients express before a surgical intervention?
- How do patients perceive that the results after surgical interventions meet their expectations?
- Do patients express concepts of importance postoperatively that are not examined by CLEFT-Q?
- How do healthcare professionals perceive that the use of CLEFT-Q affects clinical decisions and processes?
Participants will
- Fill out the questionnaire CLEFT-Q twice with a two-week space.
- Before and 1 year after an operation.
- Be interviewed about their experiences related to an operation or using CLEFT-Q.
Researchers will compare results from the cleft lip and palate population to see if there is a difference between them and a population without cleft lip and palate.
Eligibility
Inclusion Criteria:
- Cleft lip and/or palate
- Planned secondary surgery of the nose, lips, jaw or to improve speech
- Can speak and read Swedish
Exclusion Criteria:
- Multiple surgeries at once