Overview
TRACER is a study aiming to investigate the feasibility of transition coaching sessions for patients moving from paediatric to adult rheumatology care.
Description
TRACER is a feasibility study investigating transition coaching for patients with rheumatic disease transferring from paediatric to adult rheumatology care. This is a vulnerable time in the patients' care and life as they are assuming more responsibility for their health and undergoing significant life transitions. There is risk for increased morbidity and mortality around this time if the patient are not well supported and if they do not stay engaged with care. This intervention aim to provide self-efficacy, self-management, coping skills and support to patients making the transition. This study aims to assess the feasibility of conducting a multi-centre randomized trial.
Eligibility
Inclusion Criteria:
- Patient with pediatic-onset rheumatic disease
- At their last paediatric rheumatology appointment prior to transferring to adult rheumatology care
- Able to communicate in English
- Have a phone or device capable of participating in video conference
- Available over the next 8 months
Exclusion Criteria:
- Cognitive impairment preventing participation in individualized education sessions (as determined by medical staff)